News Advisory
NIH Launches Undiagnosed Diseases Program
|
| What: |
Teleconference to discuss new
trans-NIH clinical research program and its anticipated service
to the medical community and patients from across the United
States. |
| When: |
Monday, May 19, 11 a.m. - 12 p.m. Eastern |
| Where: |
Teleconference. Reporters to dial-in at: 800-862-9098;
international reporters call: 785-424-1051.
Conference ID/Password: 7NIHUDPNEWS |
| Who: |
Elias A. Zerhouni, M.D.,
Director, NIH
John I. Gallin, M.D., Director, Clinical
Center, NIH
William A. Gahl, M.D., Ph.D., Clinical Director,
National Human Genome Research Institute, NIH
Stephen Groft, Pharm.D., Director, NIH Office
of Rare Diseases
Amanda Young, NIH Clinical Center patient,
whose rare genetic disorder took 10 years to diagnose. |
The NIH Clinical Center (CC) is the clinical research hospital
for the National Institutes of Health. Through clinical research,
physician-investigators translate laboratory discoveries into better
treatments, therapies and interventions to improve the nation's
health. For more information, visit http://clinicalcenter.nih.gov.
The NIH Office of Rare Diseases stimulates and coordinates research
on rare diseases and supports research to respond to the needs
of patients, health care providers and the research communities
involved in the care, treatment, and evaluation of products for
the prevention, diagnosis, or treatment of these conditions. For
more information about ORD and its programs, visit rarediseases.info.nih.gov.
The Office of the Director, the central office at NIH, is responsible
for setting policy for NIH, which includes 27 Institutes and Centers.
This involves planning, managing, and coordinating the programs
and activities of all NIH components. The Office of the Director
also includes program offices which are responsible for stimulating
specific areas of research throughout NIH. Additional information
is available at http://www.nih.gov/icd/od/index.htm.
NHGRI is one of the 27 institutes and centers at the NIH, an agency
of the Department of Health and Human Services. The NHGRI Division
of Intramural Research develops and implements technology to understand,
diagnose and treat genomic and genetic diseases. Additional information
about NHGRI can be found at its Web site, www.genome.gov.
The National Institutes of Health (NIH) — The Nation's
Medical Research Agency — includes 27 Institutes and
Centers and is a component of the U.S. Department of Health and
Human Services. It is the primary federal agency for conducting
and supporting basic, clinical and translational medical research,
and it investigates the causes, treatments, and cures for both
common and rare diseases. For more information about NIH and
its programs, visit www.nih.gov. |
