Patient reported outcomes – 1
Narrator: This is NIH Health Matters. I’m Joe Balintfy. Lynch syndrome, an inherited form of cancer, is caused by mutations in at least five genes.
Davis: Only 5% of patients who have Lynch syndrome are diagnosed.
Narrator: Meg Davis, a Lynch syndrome patient and survivor says more awareness is needed.
Davis: I think it’s important to have more than just a few geneticists knowing about Lynch syndrome because it is a lot more common than we realize.
Narrator: In the United States, about 160,000 new cases of colorectal cancer are diagnosed each year. Roughly three percent of these cancers are caused by Lynch syndrome. For details, including available genetic tests, visit the website rarediseases.info.nih.gov. Health Matters is produced by the NIH, part of the U.S. Department of Health and Human Services.
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