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A Role for Everyone
Anyone in the United States will be able to voluntarily enroll in the Precision Medicine Initiative® (PMI) Cohort Program, either directly through a website or with participating healthcare provider organizations, both of which will be established in 2016. Participants will volunteer to share core data including their electronic health records, health survey information, and mobile health data on lifestyle habits and environmental exposures. They would also undergo a standard baseline exam for vital signs, medication assessment, and past medical history, and provide a blood sample. Participants will have access to their study results, along with summarized data from across the cohort. All of this will be accomplished with essential privacy and security safeguards in place. The PMI Cohort Program will be a highly interactive research model, with participants as partners in the development and implementation of the research and with significant representation in PMI Cohort Program governance and oversight. Through this dynamic community, researchers will be able to advance the information derived from this cohort into new knowledge, approaches, and treatments.
To be most effective and comprehensive, the PMI Cohort Program will engage partners across all communities — scientific, medical, health, and societal — and public as well as private sectors. The PMI Cohort Program expects to begin enrolling volunteers in 2016. NIH and its partners will launch a communication campaign when enrollment begins to let people all over the country know that the time has come to join. To stay up to date on PMI Cohort Program developments, sign up for email updates on the website.
This page last reviewed on February 24, 2016