Workshop Planning Team White Papers

Four working groups from many scientific disciplines and sectors were assembled in advance of the workshop (Precision Medicine Initiative: Building a Large U.S. Research Cohort) to identify challenges and opportunities related to building a large research cohort and to outline concrete steps to meet these challenges. The working group members brought expertise in epidemiology, genomics, privacy, health information, and mobile technologies. These reports reflect the views of the authors and were designed to aid discussion at the NIH Workshop and do not represent official NIH findings.

Read the White Papers:

• Building a Consortium of Cohorts — Cohort Identification and Participant Recruitment
• Participant Engagement, Data Privacy, and Novel Ways of Returning Information to Participants
• Data Collection and Mobile Technologies
• Opportunities and Challenges Related to the Use of Electronic Health Records Data for Research