June 26, 2023

The INCLUDE Project Clinical Trials Seminar Series: Value of Diverse Perspectives in Down Syndrome Research

Overview of Meeting

  • Engaging the Down syndrome Community 
  • Expand Diversity of Down syndrome Participants 
  • Increase Diversity of Down syndrome Researchers/Trainees 

Welcome and Introductions
1:00 p.m. - 1:05 p.m.
Welcome Remarks and Overview of Diversity in DS Research
Sujata Bardhan, M.S., Ph.D. Program Director, NICHD.

1:05 p.m. – 1:25 p.m.
Karriem Watson, D.H.S., M.S., M.P.H.
All of Us Research Program, Chief Engagement Officer, National Institutes of Health.

1:25 p.m. - 1:45 p.m.
Amelie G. Ramirez, Dr.PH.
Professor and Chair, Department of Population Health Sciences, University of Texas Health San Antonio. Director, Institute for Health Promotion Research.

1:45 p.m.– 2:05 p.m.
Jaia Thrower, Self-advocate
Leesha Thrower, Ph.D., Parent

Closing Remarks
2:05 p.m. – 2:10 p.m.
Melissa A. Parisi, M.D., Ph.D.
Branch Chief, Intellectual and Developmental Disabilities Branch (IDDB), NICHD.

Open Discussion
2:10 p.m. – 2:30 p.m.

This page last reviewed on January 3, 2024