IC Directors’ Meeting Highlights — Thursday, May 3, 2018

Announcements

Dr. Collins provided a summary of his trip to the Vatican. He raised the topic of the General Data Protection Regulation (GDPR), recently passed in Europe, and how it will apply to NIH-funded research. Carrie Wolinetz and Rob Eiss are leads and are sending out guidance to internal NIH groups. Grantee questions are to be referred to the in the interim. Dr. Tabak announced that ICDs with opioid projects we intend to fund in FY2018 received notifications, and that we will follow up regarding receiving and reviewing FY19 proposals.

Global Alliance for Genomics and Health

Ewan Birney and Peter Goodhand presented on the Global Alliance for Genomics and Health (GA4GH), including the program’s history and operation, and current activities regarding genetic data sharing, data capture, and knowledge standards.